Hi DannyJ,
I’m so sorry for the troubles that you are having, and I probably cannot offer much, but I just wanted to throw this out there. Have you been tested for autonomic disorders? Dysautonomia? Orthostatic Intolerance? The list goes on and on, those are just two examples. Autonomic problems are typically difficult to diagnose; a normal MD cannot do anything to diagnose them. I’m not sure where you live, but the Mayo (Rochester, MN) has a great autonomic clinic/department. A good place to start, may be with the utilization of compression hose. If your restless leg issues are caused by a problem with your circulation, these may help. Ideally, they need to be waist high. If you cannot tolerate those, thigh high is second best. I would not recommend knee high, they cannot get the blood back to your core sufficiently. They need to be medical grade, and will cost approximately $160.00 USD. (If you are diagnosed with a problem regarding your circulation, insurance will often cover them.) Also, you need to wash them after every use. If you do not the oils in your skin will break down the compression.
Sorry, I cannot offer more. I wish you the best, and please let us know if there is anything else we can do!